Fragile X Awareness Day. Ross his story

Ross, the son of Cornerstone's Chief Executive, Edel Harris, has Fragile X. This is the most common form of inherited learning disability estimating to impact 1 in 4000 males and 1 in 6000 females.  Very often it remains undiagnosed, or misdiagnosed as autism, and is misunderstood by many professionals. Below Ross shares a day in the life of someone with Fragile X.

I am 24 years old and I live in a flat in Stonehaven with Eric the hamster.  I used to have a hamster called Derek but he died.  Eric is a big fat fluffy white hamster.

I have three support workers called David, Neil and Tobias.  They stay overnight in my flat with me and they help me to look after my flat, do shopping and cooking and we go out together to the cinema. 

I love watching football.  I support Man Utd and Aberdeen and Wolves.  My step dad, Steve and me go to see Wolves quite a lot and soon we are going to the Everton game.  For Christmas I hope I get some tickets to go to Old Trafford and if I do I'm going with my Support Worker Neil - I'm very excited about going to Old Trafford.

I like watching Fawlty Towers, Only Fools and Horses and Two and a Half Men and I like watching Coronation Street.

I have three jobs - on Monday, Tuesday and Friday I work in the Belvedere Hotel helping in the kitchen washing the dishes and preparing some food.  On Wednesday I get the bus to Banchory and I work in a shop until 2 o clock and on a Thursday I work in a shop in Stonehaven.

I go to see my brother Stuart sometimes.  He is at University in Glasgow.  

I am very happy although I wish I had a girlfriend and sometimes I get lonely.  My mum and Steve live very nearby and my Mum always comes into the flat to see me after work.  My granddad died this year and we went to the funeral in Ireland.  It was sad but it was nice to see my cousins and aunties and uncles and my granny.  I wrote a speech about my granddad and my mum read it out at lunch after the funeral.  I used to like watching Only Fools and Horses with my granddad.

 For more information on Fragile X please visit, http://www.fragilex.org.uk/

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